Friday, March 23, 2012

Health Literacy Done Right! 'Let's Talk About Flu' with Wisconsin Literacy


March 15, 2012, Erin Aagesen of Wisconsin Literacy, Inc provided a lively and thoughtful discussion  of the "nuts and bolts" of conducting a community-based program evaluation. 


Erin Aagesen, MS, MPH is the Health Literacy Coordinator at  Health Literacy Wisconsin, a division of Wisconsin Literacy, Inc. Erin manages statewide health literacy interventions in partnership with Wisconsin Literacy’s 63 member literacy agencies, community-based agencies and health care organizations throughout Wisconsin.

We started with a brief description of the recent health literacy project “Let’s Talk About Flu.”

We wanted to improve flu vaccination rates through plain language communication. Here's[a link to] the program: http://t.co/BzGOrfUw .  With funding from Anthem BCBS, we developed a lesson book, 1-hour workshop, and distributed flu vaccine vouchers from Walgreens.

During the fall and winter of 2011-2012, our staff conducted 53 workshops and served 921 adults with low health literacy.

We used principles from adult learning theory, including the most important: making the information relevant to participants’ lives.

We conducted the workshops  “in trusted locations where the target population regularly gathers…This was really important to us, and a reason we think we saw success.  We delivered the workshops in trusted settings where people already live, work, study and socialize.”

How did you determine the people had low health literacy?

“Most participants were adults from our 63 member literacy agencies, who are reading below the 5th grade level.  We also worked with populations in which there is generally a large overlap with low literacy, including [the] homeless.”

Can you explain the difference between program evaluation and research as it relates to community based programs?

“According to @NIHforHealth: ‘Research is scientific inquiry... it produces generalizable knowledge that advances a field.’  It would be wonderful if we had a research partner for all community-based initiatives, but that’s not always realistic. 

CBOs [Community Based Organizations], it's OK not to be research experts. Define and systematically pursue your goals and methods in alignment with your mission.  Program Eval[uation] takes into account program goals, stakeholder interests and “real world” constraints.  [The] Goals of Program Eval[uation][is to] Judge…[the] merit or worth of [the] program, [and] provide… info[rmation] for decision making.”

A participant followed up with this question.  How did you know the intended audience would attend [the] workshops? Did you do [a] needs assessment first?
 Erin replied, We scheduled during times those groups already meet: during literacy class time, lunch time at senior centers, etc.”

Another participant asked, Did you have extra support for those who believed "I don't get flu" or "shots don't work/[or]are bad for me"?

Erin responded,We tried to facilitate a non-judgmental conversation about why people do or do not believe in vaccination.  We also documented this info[rmation] on the pre- and post-test, so we can more effectively tailor future programming.”

Please describe the steps that you took to evaluate this project?

First Erin described the different types of evaluations that are undertaken, “Types of Eval[uation]s: Needs Assessment (What do we need?), Process Eval[uation]s (How did we do it?), Outcome Eval[uation]s (What happened as a result?)”
Then she got down to her process,  “We used fantastic resources from @UWEXCoopExt (The University of Wisconsin Extension Cooperative Extension) to develop our "Let's Talk About the Flu" eval[uation] plan.”  A link to the Cooperative Extension’s website is http://t.co/s9Z4SSAO.  According to the plan the steps in Prog[ram] Eval[uation] are:
1. “Engage Stakeholders”
2. “Focus”
3. “Collect Data”
4.  “Analyze & Interpret”
5. “ Use”

“We followed the advice to, ‘start with the end in mind.’ This meant step #1 was defining our desired outcomes.  These were: improved knowledge of flu concepts, changing vaccination intentions, and improved flu vaccination rates. We used a pre-and post-test to measure flu prevention knowledge and intentions regarding vaccination.  @Walgreens (hence Walgreens) helped us track flu vaccine outcomes via a voucher system. We tracked on-site vaccinations the day of the workshop.   We also solicited qualitative feedback from program partners and staff before, during, and after the project.”
Did you pre-test your messages and lecture content with different audiences?

“Yes, a medical student intern pre-tested our lesson book with physicians, adult learners and adult literacy program directors.  This was an essential step; we learned a great deal and revised our program and materials based on this feedback.  We also had the experience of a prior year's project to draw from.  We're all rushed, but I think scheduling time for feedback and revision upfront saved us time in the long run.”


Were freebies essential to get participation?
“We put together a freebie ‘flu kit’ with supplies from Walgreens, a thermometer, cough drops, tissue, hand sanitizer.  The Walgreens’ freebies were a hit! They got people engaged. For example, we taught numeracy concepts with the thermometer.  I don’t think you always have to give people “freebies,” but you should give them a compelling reason to participate.  It helps when you find a partner whose goals align with yours. They [Walgreens] wanted to be a community resource.”

What barriers did you have to overcome to obtain the data that you have? 

“It is challenging to obtain data from our audience (adults with low health literacy). They may be unable or reluctant to take tests.  In prior years, we asked too many questions, and didn’t emphasize why it mattered to staff and participating agencies.  This year, we had to prioritize. We asked 5 basic questions. We also tied data to reimbursement for participating programs.”

“Adult literacy learn[er]s are tested often, and we didn't want to be one more test. By def[inition], they were in our target pop.  Because it was prog[ram] eval[uation], not research, we also made a decision to make some data sacrifices to maintain our organization mission.  We did not ask learners to put their name on the tests, since stigma is an issue. So no individual data - just averages.  The important thing is that we made these choices purposefully, based on our organizational mission and program plan.  We did not have to sacrifice anything core to serving our program goals. Just to proving something generalizable.”

Did the process require translators?

“Yes, we budgeted for translators. They were arranged by the agencies, if needed, and we reimbursed them.  The participating agencies were reimbursed for time, space, staff.  Participants got freebies and a flu vaccine voucher.”

What results did you obtain from your evaluation?

“We went from a very low pre-and post-test completion rate in 2010 to over 85% in 2011. We were thrilled!”
“ [The] flu knowledge (learning objective) results [were] Ave[rage] pre-test [score]: 55.7%. Ave[rage] post-test [score]: 82.7%.”

“[The] intention to get a flu vaccine this year (belief objective) results: Pre-test: 73.9%, Post-test: 83.1%. Total changed: 109 (12%).”

 [The] Flu vaccine (behavioral objective) results: 42.4% vaccinated. 12% before workshop, 17.1% [after]”. 

“[Our] PR results: photos, videos and press clips [can be seen at]  http://t.co/VsarPgkH http://t.co/3n3N3BiM http://t.co/BDp7ReBn http://t.co/DfIwthXy .

What advice would you give others who are intent on evaluating their health literacy programs?

“You have to prioritize. We were successful because we made some decisions about what was crucial data and what was not.  [We] gather[ed] stakeholders (clients, staff, community, funders) to discuss key questions before developing…[our] evaluation plan.  And of course, ‘begin with the end in mind!”

A participant commented,   “that’s many lives potentially saved!”  

Erin responded,  “Not to mention health care system costs! According to AHRQ, [the] ave[rage] cost for outpatient visit in 2008 was $169.”

Do you have any final thoughts to share?
“I find this liberating [from the University of Wisconsin Extension Cooperative Extenstion] ‘There is no blueprint or recipe for conducting a good evaluation.’ Make it work for you!  [It has been] awesome. We loved working on this project and are very pleased we can attach some outcomes to our hard work.”

Monday, March 19, 2012

MOMS, YOU ARE NOT ALONE: Postpartum Mood Disorder


Lauren Hale @unxpctdblessing
Lauren Hale (@unxpctdblessing)a two time postpartum mood disorder survivor who describes herself as having “turned peer supporter and  advocate for families struggling with Postpartum Mood Disorders [PMDs].”   She  also hosts #ppdchat  on Twitter for families struggling with PMDs.  She joined #hchlitss on March 1, 2012 to continue our discussion of mental health literacy.  

What is PPD or Postpartum Mood Disorders? 
“A Postpartum Mood Disorder (PMD) is when a mother experiences psychological issues within 12 months of giving birth.  PMD issues can range from anxiety to depression to OCD [Obsessive Compulsive Disorder] to PTSD [Post-Traumatic Stress Disorder] or even to Psychosis, which is a medical emergency.”

One of the participants clarified that “PPD” specifically refers to “Post-Partum Depression.”

Does anyone have an understanding of the causes?
“Researchers are still working but many believe hormones are involved. [It’s]  not always the case.  [It’s] important to mention[that] thyroid issues, iron deficiency, and some vitamin deficiencies may simulate PPD symptoms.  [It is } important to rule out other causes before hopping on an anti-depressant."

So is there any information out there that educates women about PPD?
There are several blogs, websites, and organizations doing wonderful work to educate women and providers.  Postpartum Support International is a great place to start. So is Postpartum Progress.
Peer support is a key component [to care] –[It] reduces[the] isolation in our struggle [which has a ] HUGE impact. “

A participant shared her “ favorite resource for info[rmation] and community regarding PPMDs is [Postpartum Progress] http://t.co/6wkvTaYF and #PPDChat [facilitated by Lauren]  is a hugely helpful resource in this area.”

Are medical providers uneducated about PPD/ PPMD?
“They can be - PPD/PMD is still not largely covered in medical training.  Also, peri-natal women see a large variation of providers which makes it difficult to narrow down education necessity.”

A participant noted that “It can also be really difficult to find a counselor/therapist who is knowledgeable [about] PPMD.”

Another participant shared that “family doctors are [need education].  [I] explained my symptoms,[my family doctor] never suggested beyond PPD and PPA [post-partum anxiety]. “

A third participant offered another example of her experience with a health care provider. “ I found it more harmful to see a counselor who was uneducated…than not to see one.  [They] blew PPD off.”
   
Yet another participant stated, “My PCP [primary care physician] would love more info on PMD, she says they are seeing more cases and have no information.”

In your opinion, what are the primary challenges women face regarding mental health literacy? 
“I feel the primary challenge with women and M[ental] H[ealth] Literacy lies with Stigma, particularly around birth.   I also think a large part lies in fear and the ‘just get over it’ mentality which permeates our culture.  Disappointment in how [the] birth went [and/or] traumatic birth can also factor into experiencing a PMD which leads to further stigma….”

“When you feel you have to suck it up and be "supermom," things get worse.  [These are] definitely a few of the reasons women have trouble reaching out.   There are also (as with many) financial and insurance barriers to reaching out for help.”

A participant opined that “Stigma is the major problem for anyone with mental health issues.”

Another participant shared her experience.  “ The stigma expanded for me, as a Christian, with people saying crap like "Your faith is lacking" or "You need to pray more…. That sentence: "your faith is lacking," is a key component in the downfall of my mental health and my marriage.   Lots of invalidation of feelings happens around birth and new motherhood.   If your experience is atypical, it’s confusing.”

Can you identify the challenges facing providers in dealing with moms?
Lauren answered, “Medicaid in most states only covers six to eight weeks post birth.   PPD typically occurs at two to three months.  One of the biggest [issues] - is not having a solid referral network set up in order to deal with moms who are struggling. Providers may also dismiss PMD symptoms as average “new mom” exhaustion. Providers need to dig deeper and don’t be afraid to ask questions if something feels off.”
One participant shared that, “There can be fear of CPS (Child Protective Services) being called, fear of job security, concerns for security clearance for military spouses.”

Another participant believes that,  “Friends/family members need to be targeted in education about PPMD …[They need to] not be afraid to ask questions and push new moms to get help.”

What are the warning signs? What do family and friends and new moms need to know?
Some of the signs are, “If a mom is not herself, sad and withdrawing, anxious, not wanting to be with [her] baby or is hyper-vigilant.” 

Other signs include, “Psychosis [is the] most important to know – [if the mother is having] hallucinations, delusions, etc., [it is a] medical emergency, [and the mother should be taken to the] ER (Emergency Room) immediately.”

“Another important symptom is rage or anger.  [It is} Not listed [in] a lot of places, but MANY mothers experience it.  I think all parents worry about their children,  but ‘Intrusive thoughts’ are completely different and atrocious.  Intrusive thoughts are a component of Postpartum OCD, which is what I struggled with after my daughters.  My thoughts involved knives the first time around, suffocation, the second. [I] Became obsessive. 

 “Yes, [the thoughts] can be very violent... and unprovoked.  With Postpartum OCD, though, a mother rarely acts on her intrusive thoughts.  She is immediately disgusted by them.  With Psychosis, however, these thoughts become logical and she is more likely to act on them.” 

A participant offered a website address, “I also like Postpartum Progress Plain-Mama English’s list of symptoms, especially for new moms.  Plain-Mama English PPD/PPMD symptoms: http://t.co/RB0v8cF5PPD/PPMD can also feel like just not feeling anything. I felt numb a lot with mine.”

Lauren’s final thought was that, “It’s important for moms to know PPD/PMD is not something to be ashamed of...they’re not alone and there is help.”


Tuesday, March 13, 2012

How do you know it "works" in a community?

Thursday, March 15th at 8:00 pm ET/ 5:00 pm PT the Health Communication, Health Literacy, & Social Science Tweet chat welcomes Erin Aagesen from Health Literacy Wisconsin!  Erin will discuss the "nuts and bolts" of how to do a simple community-based program evaluation. 
Erin Aagesen, MS, MPH is the Health Literacy Coordinator at
Health Literacy Wisconsin, a division of Wisconsin Literacy, Inc. She manages statewide health literacy interventions in partnership with Wisconsin Literacy’s 63 member literacy agencies, community-based agencies and health care organizations throughout Wisconsin.

Erin earned a Bachelor of Arts degree in English Literature (2004) from the University of Wisconsin-Madison. She began her career as a writer and editor for the health care and insurance industries. Seeking to become an advocate for health care consumers, Erin earned master’s degrees in Life Sciences Communication (2009) and Public Health (2010) from the University of Wisconsin-Madison, with an emphasis on health communication for vulnerable populations. She completed her capstone project with Egal Shidad, a program evaluation of a Somali media project in Minneapolis and St. Paul that emphasizes first-person storytelling to improve community health outcomes. Erin joined Wisconsin Literacy in 2010.

Erin serves as the chair of the Wisconsin Public Health Association’s Marketing and Communications Committee and is a member of the Southwest/South Central Wisconsin Regional Health Literacy Committee.

Participants are encouraged to explore the links below prior to the discussion:

A 3-minute video highlighting the preliminary results of the project: http://www.youtube.com/watch?v=LeUs77fK7dQ&feature=share

An excellent resources page, including lots of program evaluation tools and tips, from the University of Wisconsin-Extension: http://www.uwex.edu/ces/pdande/evaluation/index.html

All of the resources can be overwhelming, so I recommend beginners start with the, "Planning a Program Evaluation" worksheet, which you can link to from the page above.